Memorable talks from TEDMED 2013_part I

2 May 2013 by Ivana Gadjanski, posted in TEDMED

One of the talks that made the biggest impression on me at TEDMED2013 was the talk by Salvatore Iaconesi - artist, open-source engineer, TED fellow and 2013 Eisenhower fellow who gave a very moving and yet even funny talk about the project he started once he found out he had cancer. The project he named La Cura - the cure in Italian is about sharing open-source data about the disease to everyone and getting feedback from everyone, not only doctors, but also artists, designers, hackers, scientists, doctors, photographers, videomakers, musicians, writers... The point was that every single feedback Salvatore got in this way was equally important and every single feedback helped him in the fight against the brain cancer.

This is how Salvatore starts his story:

" I have a brain cancer. 

Salvatore is showing MRI of his own brain cancer

Yesterday I went to get my digital medical records: I have to show them to many doctors.
Sadly they were in a closed, proprietary format and, thus, I could not open them using my computer, or send them in this format to all the people who could have saved my life.
I cracked them.
I opened them and converted the contents into open formats, so that I could share them with everyone."

Salvatore said he never wanted pity!

And the best news of all is that Salvatore is now fine!

Of course, the message of this talk is not that only by sharing data the cancer can be cured. The message is that the whole La Cura project, the experience, the active engagement meant a lot not only to Salvatore but also to the people around him who all felt like they are actively doing something to fight the disease instead of feeling utterly helpless and waiting to see what the doctors will say and what the cancer will "decide" to do. It helped everyone feel involved and it gave courage to everyone, most of all Salvatore.

Psychosomatic effects are very important, the way patients emotionally deal with their disease is sometimes crucial, medicine does take that into account, but perhaps it should do so even more. Not only emotions, but thoughts, actions of any kind, including artistic ones!

Being creative instead of being hopeless is bound to have positive effect on the somatic part as well.

Salvatore's example shows it clearly!

Salvatore and me at TEDMED 2013


One Response to “Memorable talks from TEDMED 2013_part I”

  1. fernando real Reply | Permalink

    Thanks for your interested , and many thanks for your contribution to a bertter world, thanks for your creativity, for your intellegence and for your courage....thanks in my name , in the name of all iinvolved at this absurd, uthopic and fascinant project, thanks in the name of United Nations ( U.N. ) , and many thanks in the name of millions womens,girls and childs arround the world, you are an inspiration and example for us , and for them....

    Wellcome to he biggest net of activist for change the world, and the most global fith columne, the all countries,international institutions, religions institutions, governments administrations, think-tanks, finance world,univeristies, NGOS, foundations, human rights associattions, womens nationals federations, multinationals the all sectors, knowledges centres of each area, and particulars the all sexual, social and policy condition, sex, age, religion confession, ethic, philosophy, ethnic...

    You have a power, and this is well , but is a responsability too, the responsability of export your knowledges, creativity, intelligence, sensibility,empathy and resources at all you can trough an altruist way.

    The United Nations ( U.N. ) & UN WOMEN ; " Change The World Programme "

    IT IS WOMAN...S.T.U.P.Y.D.S,..!! Not is economy,policy,religions,finance world,culture,education,arts,science,love,sex or fall in love.

    WOMEN WORLDWIDE SPRING REVOLUTION 2015 ; The last humanity re-evolution for change world and STOP stupyds MEN wars,MEN econony, MEN policies, MEN religions, MEN education, MEN culture, MEN science, MEN communication, MEN journalism, MEN sports, MEN sense life, MEN relationships, MEN bussines, MEN press, MEN love, MEN sex and MEN fall in love.

    I AM...........F.E.M.i.N.i.S.T......!!! UN WOMEN world campaign....

    Kiss of love , or french kiss for the true way of relation ourself, others, world, espiritual,earth, space, love, sex or fall in love.

    .........remenber your bravery.....and make poesy........!!

    We will sent you at soon possible, the complete programme , and all involucrated arround the world, down we let a blog , where you can view the first part....., check and if you all right , add your means, ideas, senses and write,make music, film, theather, videogames, press,journalism, innovation, emotional, all sciences-POESY, share in your community work, area, family this message, the blog and the compkete project.
    you can do it , only make it with passion, emotion,with soul....be expeditive, genuine, original, , dont make it the belive or think, try to translate how you sense, , let your mind free, and make it with tears, with fun, with sense, with horror, with happy.....be you.....and the theme is " Change World " or THE LIFE.....AND ......YOU .

    Change world is an attitude, not is laws, not is norms, not is policy, change world is an fall in love sense, not light or cursi sense.and the first is STOP wars, human traffick, ablacttion, rapes, killied womans, girls and childs,prostituion, and all of the MENS make at womens in all cultures, not is policy,culture,race,democrazy,education,...and all mens arround the world are guilty for make it , for silence, and for cowardice, and all we are guiltys, and in the name of all mens , i am sorry at all women i know, and all womens dont know, and now is possible start change world.

    Millions womens , girls and childs arround the world are look you, and are waiting for your courage, be them voice....

    remenber your old bravery....spread the world ...and maie poesy...

    Now is the time, the new age is coming, the age of womens sense, the new woman, the iwomen.......now it the time for change this crazy realtion.....smile and fight for the new future.......cowardice not is an option way of life....of sense , of love of work....

    Fernando Real

    id - fernanreal@hotmail.com

    phone mobile - 0034627189681

    blog - http://www.fernanreal.blogspot.com

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